Resources

Bereavement/End of Life:

Widowed Parent
https://widowedparent.org/

Widowed Parent Project supports widowed mothers and fathers with children in the homeland provides Support Groups, Research, and Information.

Get Palliative Care
https://getpalliativecare.org/

Palliative care is specialized medical care for people living with a serious illness. This type of care is focused on providing relief from the symptoms and stress of the illness. The goal is to improve quality of life for both the patient and the family.

Journey of hearts
https://journeyofhearts.org/

This site combines elements of medicine, psychiatry, poetry, prose and images to provide resources and support to those who have experienced loss.

Cancer Care – Grief and Loss
https://www.cancercare.org/tagged/grief_and_loss

CancerCare provides free, professional support services for people who have experienced the loss of a loved one to cancer, as well as grief and loss information and additional resources.

Memories of Love
http://www.memoriesoflove.org/

Memories of Love provides a comprehensive guide to planning a meaningful memorial.

Financial:

Coupon Chief
https://www.couponchief.com/guides/financial_help_for_cancer_victims

Coupon Chief provides a Financial Resources Guide for Cancer Patients.

The Simple Dollar – Financial Resources for Cancer Patients
https://www.thesimpledollar.com/financial-wellness/resources-and-financial-help-for-cancer-patients/

The Simple Dollar provides guidance and a comprehensive list of resources for cancer patients.

Cancer Care Financial Assistance
https://www.cancercare.org/financial_assistance

Cancer Care provides Financial Assistance for those with cancer.

Healthwell Foundation
https://www.healthwellfoundation.org/

The Healthwell Foundation helps the underinsured afford critical medical treatments, because no one should go without essential care.

Leukemia and Lymphoma Society
https://www.lls.org/support/financial-support

Applying for health insurance or filing health insurance claims can be a full-time job and extremely overwhelming to patients, their caregivers and families. There are many excellent guides and tools available to help in working through these challenges and determining which resources are available to them.  The Leukemia & Lymphoma Society (LLS) offers the many financial assistance programs to help individuals with blood cancer.

Patient Access Network (PAN)
https://www.panfoundation.org/

Patient Access Network helps underinsured people with life-threatening, chronic and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs and advocating for improved access and affordability.

Patient Services, Inc. 
https://www.patientservicesinc.org/

We provide financial support and guidance for qualified patients with specific, rare chronic diseases. Our team is passionate about accessibility and affordability to treatment. That’s why we are committed to helping subsidize the costs of health insurance premiums and out of pocket costs (copayments/coinsurance).

Sarcoma Alliance 
https://sarcomaalliance.org/resources/financial-assistance/

The Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education, and support.

Hand in Hand: The Suzanne Renée Leider Memorial Assistance Fund was created to offer financial assistance for a single second opinion consultation. These grants reimburse expenses related to travel, costs of the evaluation, and related expenses.

Patient Resources:

Cancer.net
https://www.cancer.net/

Trusted, compassionate information for people with cancer and their families and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians and oncology professionals.

National Ovarian Cancer Coalition
http://ovarian.org/news-resources-separator/nocc-resources

NOCC provides comprehensive resources about ovarian cancer including printables, videos, brochures, and more.

Men Against Breast Cancer
http://www.menagainstbreastcancer.org/

Men Against Breast Cancer provides resources, programs, opportunities, education, and tools to equip men when breast cancer affects loved ones.

Prostate Conditions Education Council
https://www.prostateconditions.org/

Prostate Conditions events, donations, sponsorship, and resources for prostate cancer. You can find health events and health screenings and more.

Us TOO International Prostate Cancer Education & Support Network
https://www.ustoo.org/

Us TOO International is here to empower men diagnosed with prostate cancer, and their loved ones, with the educational resources and support services to fight prostate cancer. This website offers a wealth of information, at no cost, to help make informed decisions on prostate cancer testing, active surveillance, treatment options, and management of side effects.

Helen’s Room
https://helensroom.com/

Helen’s Room offers services and products for low-income, uninsured women . All cancer patients are welcome. Provides head covering, prostheses and resource center for cancer patients. 

 

AYA:

Teen Cancer America
https://teencanceramerica.org/

Teen Cancer America provides space, teams, treatment, and research for teens and young adults with cancer including events, outreach, resources, and more!

Cassie Hines Shoes Cancer Foundation
https://www.cassiehinesshoescancer.org/about/

Cassie Hines provides more than 15 camps for young adults through cancer and beyond.

Stupid Cancer
https://stupidcancer.org/

Stupid Cancer provides programming, resources, and opportunities to connect. They have a yearly CancerCon that bring teens with cancer together.

First Descents
https://firstdescents.org/programs/

First Descents provides adventure experiences for teens and young adults 18-39 who have been diagnosed with cancer.

Cancer Hope Network
https://www.cancerhopenetwork.org/

Cancer Hope Network connects young cancer patients with those who have gone through similar types of cancers.

Smart Patients Young Adults Community
https://www.smartpatients.com/partners/nicki-leach

Smart Patients is an online community for teens and young adults affected by cancer.

Livestrong in Accordance with the YMCA
https://www.livestrong.org/what-we-do/program/livestrong-at-the-ymca

Livestrong helps young adults with cancer understand the importance of physical wellness

WeSpark Young Adult Group
https://wespark.org/

WeSpark has created a weekly hangout for teens 15-18 with cancer virtually. Events include game nights, movie nights, and more!

The Ulman Foundation
https://ulmanfoundation.org/

Provides various resources having to do with young adults with cancer including groups, virtual resources, scholarships, storytelling, etc.

Young Adult Cancer Connection
http://yacancerconnection.org/

Young Adult Cancer Connection facilitates meetups and other events to bring people with cancer together.

Survive & Thrive Cancer Programs
http://www.survivethrive.org/

They provide wellness opportunities to connect teens with cancer.

Project Koru
https://www.projectkoru.org/

Project Koru provides wellness opportunities to connect teens with cancer.

National Collegiate Cancer Foundation
http://collegiatecancer.org/

The NCCF helps bring people in college together with cancer and helps with advocacy efforts.

Elephants and Tea
https://www.elephantsandtea.com/

Elephants and Tea is the first magazine written by AYA with cancer for AYA with cancer.

Triage Cancer
https://triagecancer.org/resources/quickguides

Triage Cancer provides education for treatment and beyond.

I Had Cancer
https://www.ihadcancer.com/

I Had Cancer provides peer to peer support for AYA with cancer.

Difference Diaries
http://www.differencediaries.org/

Difference Diaries is a way to share stories and experiences to educate others on what it is like to have cancer.

Camp Kesem
https://www.campkesem.org/

Camp Kesem provides camps for children who have parents with cancer.

The Gryt Project
https://grythealth.com/the-gryt-project

The Gryt Project provides questionnaires and digital focus groups to provide resources and support for AYA.

Hope Lab: Vivibot
https://hopelab.org/

Hope Lab is a virtual chat service that helps teens with cancer.

Advocacy:

National Coalition for Cancer Survivorship
https://www.canceradvocacy.org/

NCCS’ mission is to advocate for quality cancer care for all people touched by cancer.  Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life.

Prevent Cancer Foundation
https://www.preventcancer.org/

The mission of the Prevent Cancer Foundation is to save lives through cancer prevention and early detection.

Carcinoid Cancer Foundation
https://www.carcinoid.org/about/about-the-foundation/

The Carcinoid Cancer Foundation is a nonprofit organization chartered by the State of New York for the purpose of encouraging and supporting education and research on carcinoid and related neuroendocrine cancers.

Caregiver:

Carcinoid Cancer Foundation
https://www.carcinoid.org/about/about-the-foundation/

The Carcinoid Cancer Foundation is a nonprofit organization chartered by the State of New York for the purpose of encouraging and supporting education and research on carcinoid and related neuroendocrine cancers.

AARP – Caregiver Information for Cancer
https://www.aarp.org/caregiving/health/info-2019/cancer-care.html

Provides steps and tips for how caregivers can best support loved ones with cancer.

Family Caregiver Alliance — National Center on Caregiving
https://www.caregiver.org/health-issue-or-illness/cancer

The mission of Family Caregiver Alliance (FCA) is to improve the quality of life for family caregivers and the people who receive their care.

Cancer Care Caregiver 
https://www.cancercare.org/tagged/caregiving

CancerCare provides free, professional support services for caregivers and loved ones, as well as caregiving information and additional resources.

WellSpouse.org
https://wellspouse.org/

Providing peer support and education about the special challenges and unique issues facing “well” spouses every day.

Caregiver:

CaringBridge
https://www.caringbridge.org/

From the launch of the very first CaringBridge site in 1997, we’ve been working toward a single vision: a world where no one goes through a health journey alone. In order to turn this vision into reality, we’ve made it our mission to build bridges of care and communication providing love and support on a health journey.

My LifeLine
https://www.mylifeline.org/

MyLifeLine exists to easily connect cancer patients and caregivers with friends and family in order to reduce stress, anxiety and isolation using a personal website.

Lotsa Helping Hands
https://lotsahelpinghands.com/

A central place to coordinate meals and help for friends & family and get the support needed through whatever journey you are going through.

Alternative Medicine:

NCCIH
https://www.nccih.nih.gov/

We conduct and support research and provide information about complementary health products and practices.

Osher Center for Integrative Medicine
https://osher.ucsf.edu/

Provides the highest quality healthcare by blending proven conventional and complementary medicine approaches from around the world, creating outstanding integrative health leaders through transformative education and training, and advancing the science of integrative health by conducting and disseminating rigorous research.

Nutrition:

Academy of Nutrition Dietetics 
https://www.eatright.org/

The Academy of Nutrition and Dietetics is the world’s largest organization of food and nutrition professionals and is committed to improving the nation’s health and advancing the profession of dietetics through research, education and advocacy.

American Botanical Council
https://abc.herbalgram.org/site/SPageServer/

At the American Botanical Council, also known as the Herbal Medicine Institute, we are passionate about helping people live healthier lives through the responsible use of herbs, medicinal plants.

The Herb Research Foundation
http://www.herbs.org/herbnews/

For over 35 years, the Herb Research Foundation has been helping to educate the world about herbs. We offer solid science and informed opinion, for free.

US Pharmacopeial
https://www.usp.org/

Our mission is to improve global health through public standards and related programs that help ensure the quality, safety, and benefit of medicines and foods.

Center for Food Safety
https://www.centerforfoodsafety.org/

The Center for Food Safety’s mission is to empower people, support farmers, and protect the earth from the harmful impacts of industrial agriculture.

Make A Wish:

Dream Foundation
https://www.dreamfoundation.org/

Serving terminally-ill adults and their families by providing end-of-life Dreams that offer inspiration, comfort and closure.

A Special Wish Foundation (NOTE: Child, not adult)
https://aspecialwishfoundation.org/

A Special Wish Foundation, Inc. is a non-profit charitable organization dedicated to granting the wishes of children under the age of 21 who have been diagnosed with a life-threatening disorder.

Sunshine Foundation (NOTE: Child, not adult)
https://www.sunshinefoundation.org/

Sunshine Foundation’s sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged and abused children ages three to eighteen, whose families cannot fulfill their requests due to financial strain that the child’s illness may cause.

Make-A-Wish America
https://wish.org/

Tens of thousands of volunteers, donors and supporters advance the Make-A-Wish® vision to grant the wish of every child diagnosed with a critical illness.